Congenital Heart Disease Studies

PAASS: Physical Activity and Aortic Stiffness Study
Relationship between physical activity and clinical measures of heart health in children and adolescents with congenital heart disease diagnoses over the course of two years.

  • Who can participate?
    Boys and girls 9-16 years old who have been diagnosed with Tetralogy of Fallot, Coarctation of the Aorta, or Transposition of the Great Arteries, or who have a Fontan circulation.

A QuESTT: Activity, Quality of life and Executive function Study in Teens and Tykes
Explores possible links between physical activity, quality of life and executive function (high-level thinking and planning skills) in children with congenital heart disease, over the course of two years.

  • Who can participate?
    Boys and girls ages 5-16 with congenital heart disease, who do not have a syndromic diagnosis and are able to participate in physical activities and answer questions about their lives

SEARCH: Study Evaluating Adolescents for Risk factors associated with Cardiovascular Health
A questionnaire study to evaluate cardiac risk factors and lifestyle choices including diet and physical activity in teens with and without congenital heart disease and their parents.

  • Who can participate?
    Boys and girls 8-19 years old with a cardiac diagnosis or a healthy heart, who are able to answer questions about their physical activity and lifestyle habits

Please contact us at or 604-875-2345 (ext. 6186) for more information, or if you think you or your child might be interested in participating.