Marfan Syndrome Studies

Current studies


The RxAMP study: Prescription of Physical Activity in Marfan Syndrome Patients

Effect of activity prescription, measured by accelerometers, Fitbit wearables and a survey measure, on heart health, assessed by clinical measures of heart health, and well-being, assessed using a questionnaire measure, in children and adolescents with a Marfan Syndrome diagnosis. 

  • Who can participate? 
    Boys and girls 6-18 years old who have been diagnosed with Marfan syndrome, have not had heart surgery and have been cleared to exercise by their cardiologist.
SEARCH: Study Evaluating Adolescents for Risk factors associated with Cardiovascular Health
A questionnaire study to evaluate cardiac risk factors and lifestyle choices including diet and physical activity in teens with and without congenital heart disease and their parents.

  • Who can participate? 
    Boys and girls 8-19 years old with a cardiac diagnosis or a healthy heart, who are able to answer questions about their physical activity and lifestyle habits.

Please contact us at cardioresearch@bcchr.ca or 604-875-2345 (ext. 6186) for more information, or if you think you or your child might be interested in participating!