Digital Health Studies

Texting and Connecting
Determines if implementation of a text message (SMS) platform impacts DAOA patients QoL and symptom burden.

• Who can participate?
  Boys and girls ages 12-18 years old diagnosed with Dysautonomia of Adolescence.

Let’s Text
Aims to use a SMS platform to facilitate communication between health care providers (HCP) and solid organ transplant (SOT) adolescent patients.

• Who can participate?
  All English speaking SOT adolescent patients with access to a mobile phone. 

Complementing Care in Cardiology: The use of mobile health technology to support patients and families in the Children’s Heart Centre
Aims to determine the effectiveness of the WelTel SMS communication platform in the Children's Heart Centre.

• Who can participate?
  All patients ages 10-18 years old routinely followed by the health care team in the Children’s Heart Centre. Parents of children ages 0-18 years old followed by the Children’s Heart Centre. 

Using clinical digital messaging to improve pediatric congenital heart disease patient care; health outcomes, patient satisfaction, facilitators and barriers to implementation
Aims to (1) assess the feasibility of scaling the SMS communication service to the CHD patient population, (2) to determine impact on healthcare experiences, (3) to natural language processing (NLP) to analyze patient conversational topics and (4) assess the facilitators and barriers to implementation.

• Who can participate?
  All patients 0-18 years of age, with CHD (n=1,000) or their caregivers depending on the child’s age, maturity and availability of a personal cell phone

VEXT: An 8-week Virtual EXercise and Texting program for pediatric solid organ transplant patients
Delivers a virtual home exercise program to solid organ transplant patients using a digital health platform (WelTel) that is currently being used in the Multi-Organ Transplant (MOT) program.

• Who can participate?
  Boys and girls age 8-18 years old with a solid organ transplant, have had at least 1 clinical exercise stress test, and with access to a cell phone. 

BC Children’s Hospital COVID-19 Public Health Monitoring
World-wide study to explore the use of a two-way communication platform 'WelTel' in supporting cases and contacts of COVID-19 requiring home isolation as well as access to care for patients requiring regular follow-up from their healthcare provider during physical distancing.

• Who can participate?
  Patients accessing care virtually during the COVID pandemic.

Please contact us at cardioresearch@bcchr.ca or 604-875-2345 (ext. 6186) for more information, or if you think you or your child might be interested in participating!