Researchers Search Results

•  Paediatric palliative care
•  Paediatric palliative medicine
•  Pain assessment and treatment in children
•  Telehealth and technologically mediated healthcare

Pediatric palliative care and palliative medicine are my main areas of interest. Children and families living with life-threatening disease face a number of challenges. Pediatric palliative care is quite different than adult palliative care – there are different diseases, the trajectories are different, and the needs of children and families are different.

Longitudinal studies of children with life-threatening conditions, epidemiology of children with these condition, and outcomes of palliative care are areas of active inquiry.

I am also interested in pain assessment and pain management. Pain is not well understood in children who are cognitively normal, and is very poorly understood in children with neurological impairment. Finding new treatments and tools for assessing pain is important. I am specifically interested in some new and emerging areas in biological markers of pain in children. We are launching a new study of pathways to assess and treat pain/irritability in non-verbal children.

I am the principal investigator of a CIHR-funded network, PedPalASCNet (Accessible, Sustainable, Collaborative Network in Pediatric Palliative Care), that has been together since 2004. We are a national network of clinicians and researchers in Pediatric Palliative Care representing multiple disciplines.  We use a model of 3 lenses or prisms – biomedical/clinical, psychosocial, and health services – to examine the experience of children and families with life-threatening diseases. More information can be found at: http://pediatricpalliative.com

Smaller projects include modeling complex care services; economic evaluation of pediatric hospice care; examining whether major surgery is associated with developmental milestone losses in children with severe neurological impairment; observing how families simultaneously engage in curative care and in comfort care; exploring the “meaning” of a genetic diagnosis for families who live with rare diseases.

Davies,  B., Steele, R., Krueger, G., Albersheim, S., Baird, J., Bifirie, M., Cadell, S., Doane, G., Garga, D., Siden, H,, Strahlendorf, C., Zhao, Y. Best Practice in Provider/Parent Interaction.  Qual Health Res Online ahead of print 23 August 2016 doi: 10.1177/1049732316664712

Steele, R.; Siden, H., Cadell, S., Davies, B., Andrews, G., Feichtinger, L., Singh, M. (2014). Charting the Territory: Symptoms and Functional Assessment in Children With Life-Threatening Conditions. Archives of Disease in Childhood.  99(8), 754-62.

Clark, B.A., Siden H., Straatman L. (2014) An integrative approach to music therapy in pediatric palliative care. Journal of Palliative Care. 30(3), 179-187.

Steele, R.; Cadell, S., Siden, H., Andrews, G., Smit Quosai, T., & Feichtinger, L. (2014) Impact of research participation on parents of seriously ill children. Journal of Palliative Medicine. 17(7), 788-796

Siden, HB, Carleton BC, Oberlander TF. (2013) Physician variability in treating Pain / Irritability of Unknown Origin in Children with Severe Neurological Impairment. Pain Research & Management 18(5), 243-248 FA.

Chavoshi, N., Miller, T., Siden, H. (2013) Resource utilization among individuals dying from pediatric life-threatening diseases . Journal of Palliative Medicine, 16(10), 1210-1214

Feudtner, C., Kang, T. I., Hexem, K. R., Friedrichsdorf, S. J., Osenga, K., Siden, H., Frieber, S. E., Hays, R. M., Dussel, V., & Wolfe, J. (2011). Pediatric palliative care patients: A prospective multicenter cohort study. Pediatrics, 127(6), 1094-1101.

Siden, H., & Urbanoski, K. (2011).  Using network analysis to map the formal clinical reporting process in pediatric palliative care: A pilot study. BMC Health Services Research, 11(343), 1-11. doi:10.1186/1472-6963-11-343.

Siden, H., Steele, R., Brant, R., Cadell, S., Davies, B., Straatman, L., Widger, K., & Andrews, G. (2010). Designing and implementing a longitudinal study: Charting the Territory. BMC Pediatrics, 10(67), 12 pp. doi:10.1186/1471-2431-10-67 

 Siden, H., Tucker, T., Derman, S., Cox, K., Soon, G. S., Hartnett, C., & Straatman, L. (2009). Pediatric enteral feeding intolerance: A new prognosticator for children with life-limiting illness? Journal of Palliative Care 25(3): 213-217

Siden, H., Miller, M., Straatman, L., Omesi, L., Tucker, T., & Collins, J. J. (2008). A report on location of death in paediatric palliative care between home, hospice and hospital.  Palliative Medicine, 22(7), 831-834.

• Gail Andrews, M.Ed. – Research Coordinator 
• Anne-Mette Hermansen, M.A. – Research Coordinator 

• Susan Cadell, MSW, PhD (Renison College, Waterloo U)
• Betty Davies, RN, PhD (U. Victoria) 
• Rose Steele, RN, PhD (York University)