- Overview
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My clinical research focus areas include prediction of outcomes for children with juvenile idiopathic arthritis and improving care through longitudinal outcomes registries, study of physical activity in children with juvenile idiopathic arthritis, transition of youth with rheumatic disease to adult care, and translational research in autoinflammatory disease. The strong partnerships of our Division of Pediatric Rheumatology as well as pan-Canadian collaborators in the Canadian Alliance for Pediatric Rheumatology Investigators fuel my research projects and ensure successful translation of research results to practice. I have particular interest in creative knowledge translation in pediatric rheumatology research, and active inclusion of patients and families into research.
- Publications
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Relationship of Fatigue, Pain Interference, and Physical Disability in Children Newly Diagnosed With Juvenile Idiopathic Arthritis
Arthritis Care and Research
DOI: 10.1002/acr.25377
2024Safety and effectiveness of abatacept in juvenile idiopathic arthritis: Results from the PRINTO/PRCSG registry
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keae025
2024Impact of employment and income support interventions on the health of young adults with episodic disability: Findings from a systematic review
Scandinavian Journal of Work, Environment and Health
DOI: 10.5271/sjweh.4133
2024A decade of progress in juvenile idiopathic arthritis treatments and outcomes in Canada: Results from ReACCh-Out and the CAPRI registry
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/kead560
2024Clinical Characteristics of Adolescents With Juvenile Idiopathic Arthritis Transitioning to Adult Rheumatology Care in Canada: Results From the CAPRI Registry
Journal of Rheumatology
DOI: 10.3899/jrheum.2023-0783
2024CRP and sCD25 help distinguish between adult-onset Still's disease and HLH
European Journal of Haematology
DOI: 10.1111/ejh.14267
2024Double Trouble! Do Workplace Supports Mitigate Lost Productivity for Young Workers with Both Severe Rheumatic Diseases and Depressive Symptoms?
Journal of Occupational Rehabilitation
DOI: 10.1007/s10926-024-10217-8
2024Comparing Canadian paediatric rheumatology practice to the 2019 ACR Juvenile Idiopathic Arthritis guidelines: Results from the CAPRI Registry
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keac468
2023Divided in a digital economy: Understanding disability employment inequities stemming from the application of advanced workplace technologies
SSM - Qualitative Research in Health
DOI: 10.1016/j.ssmqr.2023.100293
2023Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis
Journal of Rheumatology
DOI: 10.3899/jrheum.2022-1323
2023Predictors of persisting pain in children with Juvenile Idiopathic Arthritis: a case control study nested in the ReACCh-Out cohort
Pediatric Rheumatology
DOI: 10.1186/s12969-023-00885-w
2023How Does Job Insecurity and Workplace Activity Limitations Relate to Rheumatic Disease Symptom Trajectories in Young Adulthood? A Longitudinal Study
Arthritis Care and Research
DOI: 10.1002/acr.24982
2023The future of work in shaping the employment inclusion of young adults with disabilities: a qualitative study
Equality, Diversity and Inclusion
DOI: 10.1108/EDI-06-2022-0154
2023Validation of the parent global assessment as a health-related quality of life measure in juvenile idiopathic arthritis: results from ReACCh-Out
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keac350
2023A Comparison of International League of Associations for Rheumatology and Pediatric Rheumatology International Trials Organization Classification Systems for Juvenile Idiopathic Arthritis Among Children in a Canadian Arthritis Cohort
Arthritis and Rheumatology
DOI: 10.1002/art.42113
2022Parent-Reported Medication Side Effects and Their Impact on Health-Related Quality of Life in Children With Juvenile Idiopathic Arthritis
Arthritis Care and Research
DOI: 10.1002/acr.24610
2022Variations in Pediatric Rheumatology Workforce and Care Processes Across Canada
Journal of Rheumatology
DOI: 10.3899/jrheum.201611
2022Impact of the COVID-19 pandemic on juvenile idiopathic arthritis presentation and research recruitment: Results from the CAPRI registry
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keab812
2022All hands on deck: A multidisciplinary approach to SARS-CoV-2-associated MIS-C
Paediatrics and Child Health (Canada)
DOI: 10.1093/pch/pxab110
2022Celecoxib versus placebo as an adjunct to treatment-as-usual in children and youth with obsessive-compulsive disorder: Protocol for a single-site randomised quadruple-blind phase II study
BMJ Open
DOI: 10.1136/bmjopen-2021-054296
2022Rheumatic Disease Disclosure at the Early Career Phase and Its Impact on the Relationship Between Workplace Supports and Presenteeism
Arthritis Care and Research
DOI: 10.1002/acr.24620
2022Development and validation of the Kids Disability Screen for children with juvenile idiopathic arthritis: Results from the CAPRI Registry
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keac146
2022All hands on deck: A multidisciplinary approach to SARS-CoV-2-associated MIS-C,Tout le monde sur le pont: une approche multidisciplinaire du SRAS-CoV-2 associe au SIME
Paediatrics and Child Health (Canada)
DOI: 10.1093/pch/pxac018
2022Impact of the COVID-19 Pandemic on the Employment of Canadian Young Adults With Rheumatic Disease: Findings From a Longitudinal Survey
Arthritis Care & Research
Arif Jetha and Lori B. Tucker and Cynthia Chen and Monique A. M. Gignac
DOI: 10.1002/acr.24617
08/2021Fragmentation in the future of work: A horizon scan examining the impact of the changing nature of work on workers experiencing vulnerability
American Journal of Industrial Medicine
Arif Jetha and Ali Shamaee and Silvia Bonaccio and Monique A. M. Gignac and Lori B. Tucker and Emile Tompa and Ute Bu¨ltmann and Cameron D. Norman and Cristina G. Banks and Peter M. Smith
DOI: 10.1002/ajim.23262
08/2021Causal pathways to health-related quality of life in children with juvenile idiopathic arthritis: Results from the ReACCh-Out cohort
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keab079
2021Tapering Canakinumab Monotherapy in Patients With Systemic Juvenile Idiopathic Arthritis in Clinical Remission: Results From a Phase IIIb/IV Open-Label, Randomized Study
Arthritis and Rheumatology
DOI: 10.1002/art.41488
2021Risk factors associated with Pneumocystis jirovecii pneumonia in juvenile myositis in North America
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keaa436
2021Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group
Seminars in Arthritis and Rheumatism
DOI: 10.1016/j.semarthrit.2021.05.015
2021The iCanCope pain self-management application for adolescents with juvenile idiopathic arthritis: A pilot randomized controlled trial
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keaa178
2021Chronic recurrent multifocal osteomyelitis and primary sclerosing cholangitis with type 1 autoimmune hepatitis in a child with ulcerative colitis: a case report
BMC Rheumatology
DOI: 10.1186/s41927-021-00186-3
2021Children with systemic autoinflammatory diseases have multiple, mixed ethnicities that reflect regional ethnic diversity
Clinical and Experimental Rheumatology
2021Idiopathic splenomegaly in childhood and the spectrum of RAS-associated lymphoproliferative disease: a case report
BMC Pediatrics
DOI: 10.1186/s12887-021-02508-3
2021Higher concentrations of vitamin D in Canadian children with juvenile idiopathic arthritis compared to healthy controls are associated with more frequent use of vitamin D supplements and season of birth
Nutrition Research
DOI: 10.1016/j.nutres.2021.05.007
2021Soluble low-density lipoprotein receptor-related protein 1 in juvenile idiopathic arthritis
Journal of Rheumatology
DOI: 10.3899/jrheum.200391
2021Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis
Pediatric Rheumatology
DOI: 10.1186/s12969-021-00579-1
2021Health Needs Above of Automation Fears: The Role of the Future of Work in Shaping Career Decisions and Appraisals of Employment Among Young Adults with Disabilities
Research Square
DOI: 10.21203/rs.3.rs-639354/v1
2021Clinical and Psychosocial Stress Factors are Associated with Decline in Physical Activity Over Time in Children with Juvenile Idiopathic Arthritis
Research Square
DOI: 10.21203/rs.3.rs-192146/v1
2021A new Canadian inception cohort for juvenile idiopathic arthritis: The Canadian Alliance of Pediatric Rheumatology Investigators Registry
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keaa006
2020Worse Quality of Life, Function, and Pain in Children With Enthesitis, Irrespective of Their Juvenile Arthritis Category
Arthritis Care and Research
DOI: 10.1002/acr.23844
2020Real-World Effectiveness of Common Treatment Strategies for Juvenile Idiopathic Arthritis: Results From a Canadian Cohort
Arthritis Care and Research
DOI: 10.1002/acr.23922
2020Consensus treatment plans for periodic fever, aphthous stomatitis, pharyngitis and adenitis syndrome (PFAPA): A framework to evaluate treatment responses from the childhood arthritis and rheumatology research alliance (CARRA) PFAPA work group
Pediatric Rheumatology
DOI: 10.1186/s12969-020-00424-x
2020Fragmentation in the Future of Work: A Horizon Scan Examining the Impact of the Changing Nature of Work on Vulnerable Workers
Research Square
DOI: 10.21203/rs.3.rs-122507/v1
2020Clinical and associated inflammatory biomarker features predictive of short-term outcomes in non-systemic juvenile idiopathic arthritis
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/kez615
2020Parental Perspectives about Research and Knowledge Translation in Juvenile Idiopathic Arthritis
ACR Open Rheumatology
DOI: 10.1002/acr2.11111
2020Long-term outcomes and disease course of children with juvenile idiopathic arthritis in the ReACCh-Out cohort: A two-centre experience
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/keaa118
2020Teens taking charge: A randomized controlled trial of a web-based self-management program with telephone support for adolescents with juvenile idiopathic arthritis
Journal of Medical Internet Research
DOI: 10.2196/16234
2020Associations of clinical and inflammatory biomarker clusters with juvenile idiopathic arthritis categories
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/kez382
2020Periodic fever syndromes: beyond the single gene paradigm
Pediatric Rheumatology
Clara Westwell-Roper and Iwona Niemietz and Lori B. Tucker and Kelly L. Brown
DOI: 10.1186/s12969-019-0324-7
12/2019American College of Rheumatology Provisional Criteria for Clinically Relevant Improvement in Children and Adolescents With Childhood-Onset Systemic Lupus Erythematosus
Arthritis Care and Research
DOI: 10.1002/acr.23834
2019Urine biomarkers of chronic kidney damage and renal functional decline in childhood-onset systemic lupus erythematosus
Pediatric Nephrology
DOI: 10.1007/s00467-018-4049-5
2019Predicting which children with juvenile idiopathic arthritis will not attain early remission with conventional treatment: Results from the Reacch-out cohort
Journal of Rheumatology
DOI: 10.3899/jrheum.180456
2019Prospective Determination of the Incidence and Risk Factors of New-Onset Uveitis in Juvenile Idiopathic Arthritis: The Research in Arthritis in Canadian Children Emphasizing Outcomes Cohort
Arthritis Care and Research
DOI: 10.1002/acr.23783
2019Persistent disease activity remains a burden for patients with systemic lupus erythematosus
Journal of Rheumatology
DOI: 10.3899/jrheum.171454
2019Complexity in unclassified auto-inflammatory disease: A case report illustrating the potential for disease arising from the allelic burden of multiple variants
Pediatric Rheumatology
DOI: 10.1186/s12969-019-0374-x
2019Mixed methods study exploring parent engagement in child health research in British Columbia
BMJ Open
DOI: 10.1136/bmjopen-2018-025404
2019A comparison between childhood and adult onset systemic lupus erythematosus adjusted for ethnicity from the 1000 Canadian Faces of Lupus Cohort
Rheumatology (United Kingdom)
DOI: 10.1093/rheumatology/kez006
2019Factors influencing the uptake of canadian research findings into the care of children with arthritis: A healthcare provider perspective
Journal of Rheumatology
DOI: 10.3899/jrheum.180282
2019Feasibility and safety of a 6-month exercise program to increase bone and muscle strength in children with juvenile idiopathic arthritis
Pediatric Rheumatology
DOI: 10.1186/s12969-018-0283-4
2018Measles Lymphadenopathy in a Child With PFAPA Syndrome
Pediatric and Developmental Pathology
DOI: 10.1177/1093526617727970
2018"I just want to get better": Experiences of children and youth with juvenile idiopathic arthritis in a home-based exercise intervention
Pediatric Rheumatology
DOI: 10.1186/s12969-018-0273-6
2018Health-Related Quality of Life in an Inception Cohort of Children With Juvenile Idiopathic Arthritis: A Longitudinal Analysis
Arthritis Care and Research
DOI: 10.1002/acr.23236
2018A North American perspective of content and quality of websites in the English language on childhood-onset lupus erythematosus
Lupus
DOI: 10.1177/0961203317746246
2018Trajectories of pain severity in juvenile idiopathic arthritis: Results from the Research in Arthritis in Canadian Children Emphasizing Outcomes cohort
Pain
DOI: 10.1097/j.pain.0000000000001064
2018Growth and weight gain in children with juvenile idiopathic arthritis: Results from the ReACCh-Out cohort
Pediatric Rheumatology
DOI: 10.1186/s12969-017-0196-7
2017Urine biomarkers to predict response to lupus nephritis therapy in children and young adults
Journal of Rheumatology
DOI: 10.3899/jrheum.161128
2017Predicting which children with juvenile idiopathic arthritis will have a severe disease course: Results from the ReACCh-Out cohort
Journal of Rheumatology
DOI: 10.3899/jrheum.160197
2017Challenges of Diagnosing Cognitive Dysfunction With Neuropsychiatric Systemic Lupus Erythematosus in Childhood
Arthritis Care and Research
DOI: 10.1002/acr.23163
2017The importance of considering monogenic causes of autoimmunity: A somatic mutation in KRAS causing pediatric Rosai-Dorfman syndrome and systemic lupus erythematosus
Clinical Immunology
DOI: 10.1016/j.clim.2016.12.006
2017A recurring rollercoaster ride: A qualitative study of the emotional experiences of parents of children with juvenile idiopathic arthritis
Pediatric Rheumatology
DOI: 10.1186/s12969-016-0073-9
2016‘It might hurt, but you have to push through the pain’: Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents
Journal of Child Health Care
DOI: 10.1177/1367493516632616
2016Pain management for the young adult rheumatology patient in an era of medicinal marijuana legalization
Journal of Rheumatology
DOI: 10.3899/jrheum.150103
2016Gene expression deconvolution for uncovering molecular signatures in response to therapy in juvenile idiopathic arthritis
PLoS ONE
DOI: 10.1371/journal.pone.0156055
2016Comparing Presenting Clinical Features in 48 Children With Microscopic Polyangiitis to 183 Children Who Have Granulomatosis With Polyangiitis (Wegener's): An ARChiVe Cohort Study
Arthritis and Rheumatology
DOI: 10.1002/art.39729
2016Bacillus pumilus Septic Arthritis in a Healthy Child
Canadian Journal of Infectious Diseases and Medical Microbiology
DOI: 10.1155/2016/3265037
2016Validation of the Lupus Nephritis Clinical Indices in Childhood-Onset Systemic Lupus Erythematosus
Arthritis Care and Research
DOI: 10.1002/acr.22651
2016Development of system-level performance measures for evaluation of models of care for inflammatory arthritis in Canada
Journal of Rheumatology
DOI: 10.3899/jrheum.150839
2016Development of a novel renal activity index of lupus nephritis in children & young adults
Arthritis Care & Research
Hermine I Brunner and Michael Bennett and Khalid Abulaban and Marisa Klein-Gitelman and Kathleen O'Neil and Lori Tucker and Stacy Ardoin and Kelly Rouster-Stevens and Karen Onel and Nora Singer and B. Anne Eberhard and Larry Jung and Lisa Imundo and Tracey Wright and David Witte and Brad Rovin and Jun Ying and Prasad Devarajan
DOI: 10.1002/acr.22762
10/2015Cognitive Performance Scores for the Pediatric Automated Neuropsychological Assessment Metrics in Childhood-Onset Systemic Lupus Erythematosus
Arthritis Care & Research
Patricia Vega-Fernandez and Shana Vanderburgh White and Frank Zelko and Natasha M. Ruth and Deborah M. Levy and Eyal Muscal and Marisa S. Klein-Gitelman and Adam M. Huber and Lori B. Tucker and Tresa Roebuck-Spencer and Jun Ying and Hermine I. Brunner
DOI: 10.1002/acr.22571
07/2015Effects of obesity on health-related quality of life in juvenile-onset systemic lupus erythematosus
Lupus
DOI: 10.1177/0961203314555537
2015Sjögren Syndrome
Textbook of Pediatric Rheumatology
DOI: 10.1016/B978-0-323-24145-8.00030-2
2015Association of Health-Related Quality of Life in Childhood-Onset Systemic Lupus Erythematosus With Ethnicity: Results From a Multiethnic Multicenter Canadian Cohort
Arthritis Care & Research
Deborah M. Levy and Christine A. Peschken and Lori B. Tucker and Gaëlle Chédeville and Adam M. Huber and Janet E. Pope and Earl D. Silverman and Canadian Network for Improved Outcomes in SLE (CaNIOS) 1000 Faces Investigators
DOI: 10.1002/acr.22363
11/2014The prevalence of systemic autoimmune rheumatic diseases in Canadian pediatric populations: administrative database estimates
Rheumatol Int
Natalie Jane Shiff and Lisa M. Lix and Lawrence Joseph and Ciaran Duffy and Lori B. Tucker and Lawrence W. Svenson and Patrick Belisle and Sasha Bernatsky
DOI: 10.1007/s00296-014-3136-6
09/2014Chronic inflammatory arthritis prevalence estimates for children and adolescents in three Canadian provinces
Rheumatol Int
Natalie Jane Shiff and Lisa M. Lix and Kiem Oen and Lawrence Joseph and Ciaran Duffy and Elizabeth Stringer and Lori B. Tucker and Lawrence W. Svenson and Patrick Belisle and Sasha Bernatsky
DOI: 10.1007/s00296-014-3085-0
07/2014The outcomes of juvenile idiopathic arthritis in children managed with contemporary treatments: results from the ReACCh-Out cohort
Ann Rheum Dis
Jaime Guzman and Kiem Oen and Lori B Tucker and Adam M Huber and Natalie Shiff and Gilles Boire and Rosie Scuccimarri and Roberta Berard and Shirley M L Tse and Kimberly Morishita and Elizabeth Stringer and Nicole Johnson and Deborah M Levy and Karen Watanabe Duffy and David A Cabral and Alan M Rosenberg and Maggie Larché and Paul Dancey and Ross E Petty and Ronald M Laxer and Earl Silverman and Paivi Miettunen and Anne-Laure Chetaille and Elie Haddad and Kristin Houghton and Lynn Spiegel and Stuart E Turvey and Heinrike Schmeling and Bianca Lang and Janet Ellsworth and Suzanne Ramsey and Alessandra Bruns and Sarah Campillo and Susanne Benseler and Gaëlle Chédeville and Rayfel Schneider and Rae Yeung and Ciarán M Duffy
DOI: 10.1136/annrheumdis-2014-205372
05/2014A96: The Roller Coaster of Juvenile Idiopathic Arthritis: A Qualitative Examination of Parents' Emotional Responses to the Disease and Its Management
Arthritis & Rheumatology
Oralia Gomez-Ramirez and Michele Gibbon and Roberta A. Berard and Roman Jurencak and Jayne Green and Susanne Benseler and Ciarán M. Duffy and Lori B. Tucker and Ross E. Petty and Natalie Shiff and Kiem Oen and Rollin Brant and Jaime Guzman
DOI: 10.1002/art.38513
03/2014A13: The Research in Arthritis in Canadian Children Emphasizing Outcomes (ReACCh Out) Cohort: Prospective Determination of the Incidence of New Onset Uveitis in Juvenile Idiopathic Arthritis
Arthritis & Rheumatology
Karen N Watanabe Duffy and Jennifer Lee and Jaime Guzman and Nick Barrowman and Kimberly Morishita and Lynn R. Spiegel and Elizabeth Stringer and Michele Gibbon and Rae SM Yeung and Lori B. Tucker and Kiem Oen and Ciarán M. Duffy and ReACChOut Investigators
DOI: 10.1002/art.38424
03/2014A33: Cognitive Performance Scores for the Pediatric Automated Neuropsychological Assessment Metrics in Childhood-Onset Systemic Lupus Erythematosus
Arthritis & Rheumatology
Patricia Vega-Fernandez and Shana Vanderburgh and Natasha M. Ruth and Deborah M. Levy and Frank A. Zelko and Eyal Muscal and Marisa S. Klein-Gitelman and Adam Huber and Kasha Wiley and Erin C. Thomas and Lori B. Tucker and Tresa Roebuck-Spencer and Jun Ying and Hermine Brunner
DOI: 10.1002/art.38449
03/2014A67: Factors That Contribute to Classification of Children as Having Undifferentiated Juvenile Idiopathic Arthritis
Arthritis & Rheumatology
Mercedes O. Chan and Ross E. Petty and Kiem Oen and Ciarán M. Duffy and Lori B. Tucker and Rae SM Yeung and Jaime Guzman and The ReACCh Out Investigators
DOI: 10.1002/art.38483
03/2014A108: Linking Exercise, Activity and Pathophysiology in Childhood Arthritis: An Innovative Canadian Knowledge Translation Strategy
Arthritis & Rheumatology
Michele Gibbon and Lori B. Tucker and Debbie Ehrmann Feldman and Heather A. McKay and Joanie Sims-Gould and Jennifer N. Stinson and Elizabeth Stringer and Shirley M. L. Tse and Ciarán M. Duffy and LEAP Study Investigators
DOI: 10.1002/art.38529
03/2014A21: Physical Activity in Children with Juvenile Idiopathic Arthritis (JIA): The LEAP (Linking Exercise, Activity, and Pathophysiology in Childhood Arthritis) Study
Arthritis & Rheumatology
Lori B. Tucker and Heather A. McKay and Leanne M. Ward and Kristin M. Houghton and Alan M. Rosenberg and Debbie Ehrmann Feldman and Kiem Oen and Johannes Roth and Elizabeth Stringer and Adam Baxter-Jones and Ciarán M. Duffy and LEAP Study LEAP Study Investigators
DOI: 10.1002/art.38437
03/2014A systematic review of transition readiness and transfer satisfaction measures for adolescents with chronic illness
International Journal of Adolescent Medicine and Health
Jennifer Stinson and Sara Ahola Kohut and Lynn Spiegel and Meghan White and Navreet Gill and Gina Colbourne and Samantha Sigurdson and Karen Watanabe Duffy and Lori Tucker and Elizabeth Stringer and Beth Hazel and Jacqueline Hochman and John Reiss and Miriam Kaufman
DOI: 10.1515/ijamh-2013-0512
01/2014What matters most for patients, parents, and clinicians in the course of juvenile idiopathic arthritis? A qualitative study
Journal of Rheumatology
DOI: 10.3899/jrheum.131536
2014The risk and nature of flares in juvenile idiopathic arthritis: results from the reACCh-Out cohort
Pediatric Rheumatology
Jaime Guzman and Kiem Oen and Adam M Huber and Gilles Boire and Karen Duffy and Roberta Berard and Natalie J Shiff and Deborah M Levy and Elizabeth Stringer and Kimberly Morishita and Rosie Scuccimarri and Lori B Tucker and Rae SM Yeung and Ciaran Duffy and ReACCh-Out Investigators
DOI: 10.1186/1546-0096-12-s1-o9
2014Early atlantoaxial subluxation in enthesitis-related arthritis
Journal of Rheumatology
DOI: 10.3899/jrheum.131206
2014Transitioning to employment with a rheumatic disease: The role of independence, overprotection, and social support
Journal of Rheumatology
DOI: 10.3899/jrheum.140419
2014The child patient
Oxford Textbook of Rheumatology
Lori B. Tucker
DOI: 10.1093/med/9780199642489.003.0001
10/2013Association of Smoking With Cutaneous Manifestations in Systemic Lupus Erythematosus
Arthritis Care & Research
Josiane Bourré-Tessier and Christine A. Peschken and Sasha Bernatsky and Lawrence Joseph and Ann E. Clarke and Paul R. Fortin and Carol Hitchon and Shikha Mittoo and C. Douglas Smith and Michel Zummer and Janet Pope and Lori Tucker and Marie Hudson and Hector Arbillaga and John Esdaile and Earl Silverman and Gaelle Chédeville and Adam M. Huber and Patrick Belisle and Christian A. Pineau and The Canadian Network for Improved Outcomes in Systemic Lupus Erythematosus 1000 Canadian Faces of Lupus Investigators
DOI: 10.1002/acr.21966
07/2013Validation of the systemic lupus erythematosus responder index for use in juvenile-onset systemic lupus erythematosus
Ann Rheum Dis
Rina Mina and Marisa S Klein-Gitelman and Shannen Nelson and B Anne Eberhard and Gloria Higgins and Nora G Singer and Karen Onel and Lori Tucker and Kathleen M O'Neil and Marilynn Punaro and Deborah M Levy and Kathleen Haines and Alberto Martini and Nicolino Ruperto and Daniel Lovell and Hermine I Brunner
DOI: 10.1136/annrheumdis-2012-202376
01/2013Dr. LeBlanc, et al reply
Journal of Rheumatology
DOI: 10.3899/jrheum.121413
2013Neuropsychiatric Lupus: The Prevalence and Autoantibody Associations Depend on the Definition: Results from the 1000 Faces of Lupus Cohort
Seminars in Arthritis and Rheumatism
Alan M. Borowoy and Janet E. Pope and Earl Silverman and Paul R. Fortin and Christian Pineau and C. Douglas Smith and Hector Arbillaga and Dafna Gladman and Murray Urowitz and Michel Zummer and Marie Hudson and Lori Tucker and Christine Peschken
DOI: 10.1016/j.semarthrit.2012.03.011
10/2012158. Development and Testing of the Readiness for Adult Care in Rheumatology (RACER) Questionnaire for Adolescents With Rheumatic Conditions
Journal of Adolescent Health
Jennifer Stinson and Lynn Spiegel and Karen Watanabe Duffy and Lori Tucker and Elizabeth Stringer and Elizabeth Hazel and Jacqueline Hochman and Navreet Gill and Gina Colbourne and Samantha Sigurdson and Miriam Kaufman
DOI: 10.1016/j.jadohealth.2011.10.234
02/2012Access to biologic therapies in Canada for children with juvenile idiopathic arthritis
Journal of Rheumatology
DOI: 10.3899/jrheum.120089
2012Can surveillance provide epidemiological data on Aboriginal health?
Paediatrics and Child Health (Canada)
DOI: 10.1093/pch/17.8.441
2012The 1000 Canadian faces of systemic lupus erythematosus: effect of ethnicity on baseline pediatric data
Pediatric Rheumatology
Deborah M Levy and Earl D Silverman and Lori B Tucker and Gaelle Chédeville and Adam Huber and Janet E Pope and Christine A Peschken and CaNIOS Investigators
DOI: 10.1186/1546-0096-10-s1-a18
2012Influence of ethnicity on childhood-onset systemic lupus erythematosus: Results from a multiethnic multicenter Canadian cohort
Arthritis Care Res
Deborah M. Levy and Christine A. Peschken and Lori B. Tucker and Gaëlle Chédeville and Adam M. Huber and Janet E. Pope and Earl D. Silverman and the Canadian Network for Improved Outcomes in SLE 1000 Faces Investigators
DOI: 10.1002/acr.21779
2012Improving transition readiness and quality of life (QOL) with a pediatric lupus health passport
Pediatric Rheumatology
Emily Von Scheven and Lori B Tucker and Lakshmi N Moorthy and Erica F Lawson and Carolyn Neville and Deborah DaCosta and Paul R Fortin
DOI: 10.1186/1546-0096-10-s1-a23
2012Jointly managing arthritis: Information needs of children with juvenile idiopathic arthritis (JIA) and their parents
Journal of Child Health Care
DOI: 10.1177/1367493511430679
2012Preliminary criteria for global flares in childhood-onset systemic lupus erythematosus
Arthritis Care Res
Hermine I. Brunner and Rina Mina and Clarissa Pilkington and Michael W. Beresford and Andreas Reiff and Deborah M. Levy and Lori B. Tucker and B. Anne Eberhard and Angelo Ravelli and Laura E. Schanberg and Claudia Saad-Magalhaes and Gloria C. Higgins and Karen Onel and Nora G. Singer and Emily von Scheven and Lukasz Itert and Marisa S. Klein-Gitelman and Marilynn Punaro and Jun Ying and Edward H. Giannini
DOI: 10.1002/acr.20507
08/2011Atypical autoimmune hemolytic anemia
Haematologica
DOI: 10.3324/haematol.2011.050724
2011SJÖGREN’S SYNDROME
Textbook of Pediatric Rheumatology
Lori B. Tucker
DOI: 10.1016/b978-1-4160-6581-4.10028-7
2011American College of Rheumatology provisional criteria for defining clinical inactive disease in select categories of juvenile idiopathic arthritis
Arthritis Care and Research
DOI: 10.1002/acr.20497
2011Defining clinical remission and clinically inactive disease in juvenile systemic lupus erythematosus (jSLE)
Pediatric Rheumatology
Rina Mina and Laura Schanberg and Anne B Eberhard and Marisa Klein–Gitelman and Gloria Higgins and Karen Onel and Nora G Singer and Kathleen O’ Neil and Lori Tucker and Deborah Levy and Wajeeha Yousaf and Shannen Nelson and Michael Beresford and Ruben Cuttica and Graciela Espada and Angelo Ravelli and Alberto Martini and Edward Giannini and Hermine I Brunner
DOI: 10.1186/1546-0096-9-s1-o17
2011Infrapatellar bursitis in children with juvenile idiopathic arthritis: a case series
Clin Rheumatol
Jubran T. Alqanatish and Ross E. Petty and Kristin M. Houghton and Jaime Guzman and Lori B. Tucker and David A. Cabral and Robyn A. Cairns
DOI: 10.1007/s10067-010-1620-2
11/2010Usability Testing of an Online Self-management Program for Adolescents With Juvenile Idiopathic Arthritis
J Med Internet Res
Jennifer Stinson and Patrick McGrath and Ellen Hodnett and Brian Feldman and Ciaran Duffy and Adam Huber and Lori Tucker and Ross Hetherington and Shirley Tse and Lynn Spiegel and Sarah Campillo and Navreet Gill and Meghan White
DOI: 10.2196/jmir.1349
07/2010Early outcomes and improvement of patients with juvenile idiopathic arthritis enrolled in a Canadian multicenter inception cohort
Arthritis Care Res
Kiem Oen and Ciarán M. Duffy and Shirley M. L. Tse and Suzanne Ramsey and Janet Ellsworth and Gaëlle Chédeville and Anne-Laure Chetaille and Claire Saint-Cyr and David A. Cabral and Lynn R. Spiegel and Rayfel Schneider and Bianca Lang and Adam M. Huber and Paul Dancey and Earl Silverman and Alan M. Rosenberg and Bonnie Cameron and Nicole Johnson and Jean Dorval and Rosie Scuccimarri and Sarah Campillo and Ross E. Petty and Karen N. Watanabe Duffy and Gilles Boire and Elie Haddad and Kristin Houghton and Ronald Laxer and Stuart E. Turvey and Paivi Miettunen and Katherine Gross and Jaime Guzman and Susanne Benseler and Brian M. Feldman and Victor Espinosa and Rae S. M. Yeung and Lori Tucker
DOI: 10.1002/acr.20044
04/2010Rituximab treatment in a child with Rosai-Dorfman disease and systemic lupus erythematosus
Journal of Rheumatology
DOI: 10.3899/jrheum.091275
2010Clinical and serologic factors associated with lupus pleuritis
Journal of Rheumatology
DOI: 10.3899/jrheum.090249
2010An internet-based self-management program with telephone support for adolescents with arthritis: A pilot randomized controlled trial
Journal of Rheumatology
DOI: 10.3899/jrheum.091327
2010Factors associated with a longer time to access pediatric rheumatologists in Canadian children with juvenile idiopathic arthritis
Journal of Rheumatology
DOI: 10.3899/jrheum.100083
2010Predictors of early inactive disease in a juvenile idiopathic arthritis cohort: Results of a Canadian Multicenter, prospective inception cohort study
Arthritis Care and Research
DOI: 10.1002/art.24539
2009Using "real clinic" definitions to predict the course of juvenile dermatomyositis: Comment on the article by Stringer et al
Arthritis and Rheumatism
DOI: 10.1002/art.24690
2009The 1000 Canadian faces of lupus: Determinants of disease outcome in a large multiethnic cohort
Journal of Rheumatology
DOI: 10.3899/jrheum.080912
2009Surfing for juvenile idiopathic arthritis: Perspectives on quality and content of information on the internet
Journal of Rheumatology
DOI: 10.3899/jrheum.081010
2009Barriers to healthcare in a multiethnic cohort of systemic lupus erythematosus (SLE) patients: Patient and physician perceptions
Clinical Medicine: Arthritis and Musculoskeletal Disorders
DOI: 10.4137/cmamd.s2136
2009Access to pediatric rheumatology subspecialty care in British Columbia, Canada
Journal of Rheumatology
DOI: 10.3899/jrheum.080514
2009Classification, presentation, and initial treatment of Wegener's granulomatosis in childhood
Arthritis and Rheumatism
DOI: 10.1002/art.24876
2009Neutrophil gelatinase-associated lipocalin is a predictor of the course of global and renal childhood-onset systemic lupus erythematosus disease activity
Arthritis and Rheumatism
DOI: 10.1002/art.24751
2009Initial validation of a novel protein biomarker panel for active pediatric lupus nephritis
Pediatric Research
DOI: 10.1203/PDR.0b013e31819e4305
2009Corticosteroid use in childhood-onset systemic lupus erythematosus - Practice patterns at four pediatric rheumatology centers
Clinical and Experimental Rheumatology
2009The Young Person with Systemic Lupus Erythematosus
Adolescent Rheumatology
Lori Tucker
DOI: 10.3109/9781420021103-9
03/2008Fitness, fatigue, disease activity, and quality of life in pediatric lupus
Arthritis Rheum
Kristin M. Houghton and Lori B. Tucker and James E. Potts and Donald C. Mckenzie
DOI: 10.1002/art.23534
2008Adolescent onset of lupus results in more aggressive disease and worse outcomes: Results of a nested matched case-control study within LUMINA, a multiethnic US cohort (LUMINA LVII)
Lupus
DOI: 10.1177/0961203307087875
2008Neutrophil gelatinase-associated lipocalin as a biomarker of disease activity in pediatric lupus nephritis
Pediatric Nephrology
DOI: 10.1007/s00467-007-0685-x
2008Making the diagnosis of systemic lupus erythematosus in children and adolescents
Lupus
DOI: 10.1177/0961203307078068
2007Old challenges and new directions in pediatric rheumatology
Journal of Rheumatology
2006Systemic lupus erythematosus in the pediatric North American native population of British Columbia
Journal of Rheumatology
2006Transition of the Adolescent Patient with Rheumatic Disease: Issues to Consider
Pediatric Clinics of North America
Lori B. Tucker and David A. Cabral
DOI: 10.1016/j.pcl.2005.01.008
04/2005Primary Sjögren's syndrome in dizygotic adolescent twins: One case with lymphocytic interstitial pneumonia
Journal of Rheumatology
2005Primary Sjögren's syndrome in children and adolescents: Are proposed diagnostic criteria applicable?
Journal of Rheumatology
2005Bone mineral density in children and adolescents with systemic lupus erythematosus, juvenile dermatomyositis, and systemic vasculitis: Relationship to disease duration, cumulative corticosteroid dose, calcium intake, and exercise
Journal of Rheumatology
2005Gender and ethnic origin have no effect on longterm outcome of childhood-onset systemic lupus erythematosus
Journal of Rheumatology
2004Relative ineffectiveness of triamcinolone acetonide in the treatment of juvenile idiopathic arthritis [6]
Arthritis and Rheumatism
DOI: 10.1002/art.20629
2004The Role of Subcutaneous Administration of Methotrexate in Children with Juvenile Idiopathic Arthritis Who Have Failed Oral Methotrexate
Journal of Rheumatology
2004Guidelines for blood test monitoring of methotrexate toxicity in juvenile idiopathic arthritis
Journal of Rheumatology
2004A pruritic linear urticarial rash, fever, and systemic inflammatory disease in five adolescents: Adult-onset still disease or systemic juvenile idiopathic arthritis sine arthritis?
Pediatric Dermatology
DOI: 10.1111/j.0736-8046.2004.21513.x
2004Controversies and advances in the management of systemic lupus erythematosus in children and adolescents
Best Practice & Research Clinical Rheumatology
Lori B Tucker
DOI: 10.1053/berh.2002.0254
07/2002The SLICC damage index: Past, present and future
Lupus
DOI: 10.1191/0961203302lu190sa
2002Rheumatic manifestations of Bartonella infection in 2 children
Journal of Rheumatology
2002The early pattern of joint involvement predicts disease progression in children with oligoarticular (pauciarticular) juvenile rheumatoid arthritis
Arthritis and Rheumatism
DOI: 10.1002/art.10544
2002Induction of anti-DNA antibodies: Commentary on article by Satake et al
Lupus
DOI: 10.1191/096120301667736481
2001Outcome measures in childhood rheumatic diseases
Curr Rheumatol Rep
Lori B. Tucker
DOI: 10.1007/s11926-000-0074-y
08/2000Whose life is it anyway? Understanding quality of life in children with rheumatic diseases
Journal of Rheumatology
2000Update on functional assessment tools
Journal of Rheumatology
2000Malignancies in children who initially present with rheumatic complaints
The Journal of Pediatrics
David A. Cabral and Lori B. Tucker
DOI: 10.1016/s0022-3476(99)70372-0
01/1999Soluble adhesion molecules in juvenile rheumatoid arthritis
Journal of Rheumatology
1999Minocycline-induced lupus in adolescents
Pediatrics
DOI: 10.1542/peds.101.5.926
1998Caring for the adolescent with systemic lupus erythematosus.
Adolescent medicine (Philadelphia, Pa.)
1998Identification of Th subsets in juvenile rheumatoid arthritis confirmed by intracellular cytokine staining [3]
Journal of Rheumatology
1998Fibrin d-dimer as a marker of disease activity in systemic onset juvenile rheumatoid arthritis
Journal of Rheumatology
1998Splenic vasculitis in juvenile onset mixed connective tissue disease [4]
Journal of Rheumatology
1998SOLUBLE ADHESION MOLECULES IN JUVENILE RHEUMA TOID ARTHRITIS • 1838
Pediatr Res
Bradley J Bloom and Lori B Tucker and Laurie C Miller and Jane G Schaller and Peter R Blier
DOI: 10.1203/00006450-199704001-01857
04/1997Anti-MPO in adult- and childhood-onset SLE [8]
British Journal of Rheumatology
1997Prolonged fevers of unknown origin in children: Patterns of presentation and outcome
The Journal of Pediatrics
Laurie C. Miller and Betsy A. Sisson and Lori B. Tucker and Jane G. Schaller
DOI: 10.1016/s0022-3476(96)70075-6
09/1996Hypertrophic bursopathy of the subacromial-subdeltoid bursa in juvenile rheumatoid arthritis: Sonographic appearance
Pediatric Radiology
DOI: 10.1007/BF01395714
1996Incidence of anti Hsp 90 and 70 antibodies in children with SLE, juvenile dermatomyositis and juvenile chronic arthritis
Clinical and Experimental Rheumatology
1996Nonrheumatic conditions in children including infectious diseases and syndromes
Current Opinion in Rheumatology
Lori B. Tucker
DOI: 10.1097/00002281-199509000-00010
09/1995Cross-linked elastin and collagen degradation products in the urine of patients with scleroderma
Arthritis & Rheumatism
DOI: 10.1002/art.1780380409
1995Parents of children with rheumatic disease as peer counselors
Arthritis & Rheumatism
DOI: 10.1002/art.1790080211
1995Neuropsychological assessment of children and adolescents with systemic lupus erythematosus
Lupus
DOI: 10.1177/096120339500400310
1995Adult- and childhood-onset systemic lupus erythematosus: A comparison of onset, clinical features, serology, and outcome
Rheumatology
DOI: 10.1093/rheumatology/34.9.866
1995Systemic lupus in children: daughter of the Hydra?
Lupus
DOI: 10.1177/096120339500400201
1995Bicipital synovial cysts in juvenile rheumatoid arthritis: Clinical description and sonographic correlation
Journal of Rheumatology
1995von Willebrand factor in juvenile dermatomyositis
Journal of Rheumatology
1995Vasculitis, Kawasaki disease, and hemolytic uremic syndrome
Current Opinion in Rheumatology
Lori B. Tucker
DOI: 10.1097/00002281-199409000-00013
09/1994Magnetic Resonance Imaging in Staphylococcal Osteomyelitis With Negative Bone Scan
Clinical Pediatrics
DOI: 10.1177/000992289403301109
1994Worsening of the rash of juvenile dermatomyositis with hydroxychloroquine therapy [4]
Journal of Rheumatology
1994Demography of a regional pediatric rheumatology patient population
Journal of Rheumatology
1994Antiphospholipid Syndrome in Childhood: The Great Unknown
Lupus
DOI: 10.1177/096120339400300502
1994Juvenile rheumatoid arthritis
Current Opinion in Rheumatology
Lori B. Tucker
DOI: 10.1097/00002281-199305050-00010
09/1993Human parvovirus B19-associatedarthritis in children
The Journal of Pediatrics
James J. Nocton and Laurie C. Miller and Lori B. Tucker and Jane G. Schaller
DOI: 10.1016/s0022-3476(06)80111-3
02/1993Heritable disorders of connective tissue and disability and chronic disease in childhood
Current Opinion in Rheumatology
1992Methotrexate treatment of recalcitrant childhood dermatomyositis
Arthritis & Rheumatism
DOI: 10.1002/art.1780351006
1992Systemic lupus erythematosus, dermatomyositis, scleroderma, vasculopathies, and other connective tissue disorders in children
Current Opinion in Rheumatology
Lori B. Tucker
DOI: 10.1097/00002281-199110000-00016
10/1991Independent analysis of the 16/6 idiotype lupus model: A role for an environmental factor?
Journal of Immunology
1991Comparison of DNA antibody idiotypes in human sera: an international collaborative study of 19 idiotypes from 11 different laboratories
Journal of Autoimmunity
DOI: 10.1016/S0896-8411(05)80008-3
1990Individual VH genes detected with oligonucleotide probes from the complementarity-determining regions
Journal of Immunology
1990Molecular analysis of a germ line-encoded idiotypic marker of pathogenic human lupus autoantibodies
Journal of Immunology
1990Postnatal progression from second- to third-degree heart block in neonatal lupus syndrome
The Journal of Pediatrics
Robert L. Geggel and Lori Tucker and Jlona Szer
DOI: 10.1016/s0022-3476(88)80581-x
1988Antiphospholipid Syndrome in Children
Hughes Syndrome
Lori B. Tucker and Rolando Cimaz
DOI: 10.1007/1-84628-009-5_20 - Research
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Promoting successful transition from pediatric rheumatology care to adult care for youth with chronic rheumatic diseases:
I am a collaborator on several projects aimed at development and testing of transition resources for youth and younger children with JIA or other rheumatic diseases. Our research group is currently doing a randomized controlled trial of a youth on line self management website called Teens Taking Charge, aimed at youth with JIA. We are in the development phase for a similar self management program for younger children with JIA and their parents. We are also starting final testing of a transition questionnaire called RACER (Readiness for Adult Care in Rheumatology), which will be tested in a number of Canadian pediatric rheumatology centres.LEAP: Linking Exercise, Activity and Pathophysiology in Canadian Children with Arthritis: A Pan-Canadian Team:
I am a co-nominated Principal Investigator on this pan-Canadian project studying physical activity in children with JIA. Our project aims are to study the determinants of physical activity in children with JIA, to examine variables that predict PA in these patients, and to determine how PA influences clinical outcomes, inflammatory biomarkers, and the development of bone and muscle in children with JIA. The project involves 12 pediatric rheumatology centres across Canada and we have enrolled nearly 500 children and youth with JIA into a 2 year longitudinal study, looking at their level of PA over time as well as clinical, inflammatory, bone and muscle parameters. In addition, we are performing a novel pilot exercise intervention study, looking at new ways to encourage increased targeted activity in children with JIA that is safe and effective as well as fun.ReACCH-Out: Research on Arthritis in Canadian Children, Emphasizing Outcomes: a Canadian multi-centre collaborative outcomes study
I am one of four principal investigators for this seminal CIHR-funded NET project, in which our pediatric rheumatology research program in Canada enrolled 1,500 newly diagnosed children with JIA into a longitudinal registry. This project has resulted in 6 publications to date and a number more in preparation, and is providing us with important data demonstrating the trajectory of JIA using modern treatments, prediction of disease course using disease features from early in disease, evaluation of pain over the course of JIA, incidence and prevalence of JIA-associated uveitis, as well as other areas of research. This project has provided the infrastructure to allow CAPRI to obtain funding and move forward to establish a long-lasting Canadian JIA registry.Research Group MembersElse Bosman, Research and Database coordinator
Timothy Cheng, Co-op Student
Clare Cunningham, Research Assistant
Anna Draper, Research Assistant
Kristina Kurvits, Co-op Student
Nick McPhate, Research & Database Coordinator
Arnima Singh, Research Assistant
Government of Canada invests $20 million to improve health outcomes of children living with rare diseases
The Government of Canada is providing $20 million over five years for the creation of RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network. This national network, of which BCCHR will be a part, will support national and international clinical trials to advance discoveries, enable better prevention, diagnosis, and treatments, to improve health outcomes for children and adolescents affected by rare diseases.
