Health-related Quality of Life in Children with Lower Limb Deficiency
Objectives: a) To develop and validate a patient-reported quality of life tool for children with lower limb deficiency; b) To establish the baseline health-related quality of life in these children using the newly developed tool; c) To investigate the quality of life of caregivers of children with lower limb deficiency.
Multicentre Pin Site Infection Study
Objective: To measure and document pin site infection rate and pin site care across Canada, US and UK through a multi-centre pin site infection database. This study involving ten surgeons (BCCH being the primary site) across various sites will provide important information for limb lengthening and reconstruction services across the world, as well as parents/primary caregivers of children in external fixation devices (EFDs). By identifying the factors contributing to pin site infections, this study will take another step towards improving clinical care for children in EFDs.
Preventative Multimodal Analgesia for Children Undergoing Lower Limb Reconstruction with External Fixators: A Prospective Study of Postoperative Pain
Objective: To assess the peri-operative analgesia regimen that has been previously developed for children undergoing limb reconstruction surgery at BC Children’s Hospital, during the acute and long-term post-operative recovery phase. This study is being conducted in collaboration with the Department of Anesthesiology, Pharmacology & Therapeutics.
Simple Bone Cysts in Kids - A multi-centre randomized clinical trial
Objective: To compare the effectiveness of two common treatments used by orthopaedic surgeons to treat simple bone cysts. This study will provide Level I evidence comparing the effectiveness of two treatment interventions for SBC in pediatric patients: 1) curettage with puncture, and 2) curettage with puncture and injection of Vitoss morsels.
Primary Site – Hospital for Sick Kids, Toronto
Weight-bearing MRI in Perthes Disease: A Pilot Study
Objective: To evaluate femoral head deformity and extrusion in Legg–Calvé–Perthes Disease using functional weight-bearing MRI.
Next Generation Sequencing (NGS) in Rare Disorders in Orthopaedics
Objective: To identify rare disorders in orthopaedics using NGS. This study is collaboration with the Department of Biochemical Diseases.
Limb Deficiencies – Development of a Care Map for Affected Families
Objective: To understand the healthcare experiences of parents who have children with congenital limb deficiencies, specifically in terms of the level of emotional support and information that they have received. This project, being done in collaboration with the Department of Medical Genetics, may help us develop a care map in order to strengthen parental support systems for affected families.