Overview

Dr. Julie Robillard is Scientist in Patient Experience at BC Children’s and Women’s Hospital and Health Centre, and Assistant Professor of Neurology at the University of British Columbia. She is also Associate Director of the National Core for Neuroethics, an interdisciplinary research group dedicated to tackling the ethical, legal, policy and social implications of advances in neuroscience. Dr. Robillard brings her multidisciplinary background in neuroscience and biomedical ethics to the study of issues the intersection of patient experience, brain health and technology. Her current work focuses on the development of tools for the evaluation of the quality, ethics and experience of health intervention and health services, with a focus on brain health technology. She is also investigating the integration of artificial intelligence in technology for older adults with dementia and their caregivers as a means to ensure adherence to ethical norms.

Publications

Technology and Dementia: The Future is Now.
Dementia and geriatric cognitive disorders
Astell AJ and Bouranis N and Hoey J and Lindauer A and Mihailidis A and Nugent C and Robillard JM and Technology and Dementia Professional Interest Area ...
DOI: 10.1159/000497800
PubMed: 31247624
06/2019

Availability, readability, and content of privacy policies and terms of agreements of mental health apps.
Internet interventions
Robillard JM and Feng TL and Sporn AB and Lai JA and Lo C and Ta M and Nadler R
DOI: 10.1016/j.invent.2019.100243
PubMed: 30949436
03/2019

A Neuroethics Backbone for the Evolving Canadian Brain Research Strategy.
Neuron
Illes J and Weiss S and Bains J and Chandler JA and Conrod P and De Koninck Y and Fellows LK and Groetzinger D and Racine E and Robillard JM and Sokolowski MB
DOI: 10.1016/j.neuron.2018.12.021
PubMed: 30731060
02/2019

Robotic automation can improve the lives of people who need social care.
BMJ (Clinical research ed.)
Prescott TJ and Robillard JM
DOI: 10.1136/bmj.l62
PubMed: 30622125
01/2019

Prioritizing Benefits: A Content Analysis of the Ethics in Dementia Technology Policies.
Journal of Alzheimer's disease : JAD
Robillard JM and Wu JM and Feng TL and Tam MT
DOI: 10.3233/jad-180938
PubMed: 31104020
01/2019

The stem cell market and policy options: a call for clarity.
Journal of law and the biosciences
Zarzeczny A and Atkins H and Illes J and Kimmelman J and Master Z and Robillard JM and Snyder J and Turner L and Zettler PJ and Caulfield T
DOI: 10.1093/jlb/lsy025
PubMed: 31143461
11/2018

The QUEST for quality online health information: validation of a short quantitative tool.
BMC medical informatics and decision making
Robillard JM and Jun JH and Lai JA and Feng TL
DOI: 10.1186/s12911-018-0668-9
PubMed: 30340488
10/2018

Patient perspectives of the experience of a computerized cognitive assessment in a clinical setting.
Alzheimer's & dementia (New York, N. Y.)
Robillard JM and Lai JA and Wu JM and Feng TL and Hayden S
DOI: 10.1016/j.trci.2018.06.003
PubMed: 30090850
07/2018

Ethical adoption: A new imperative in the development of technology for dementia.
Alzheimer's & dementia : the journal of the Alzheimer's Association
Robillard JM and Cleland I and Hoey J and Nugent C
DOI: 10.1016/j.jalz.2018.04.012
PubMed: 29937247
06/2018

Use of nonintrusive sensor-based information and communication technology for real-world evidence for clinical trials in dementia.
Alzheimer's & dementia : the journal of the Alzheimer's Association
Teipel S and König A and Hoey J and Kaye J and Krüger F and Robillard JM and Kirste T and Babiloni C
DOI: 10.1016/j.jalz.2018.05.003
PubMed: 29936147
06/2018

Digital technologies as biomarkers, clinical outcomes assessment, and recruitment tools in Alzheimer's disease clinical trials.
Alzheimer's & dementia (New York, N. Y.)
Gold M and Amatniek J and Carrillo MC and Cedarbaum JM and Hendrix JA and Miller BB and Robillard JM and Rice JJ and Soares H and Tome MB and Tarnanas I and Vargas G and Bain LJ and Czaja SJ
DOI: 10.1016/j.trci.2018.04.003
PubMed: 29955666
05/2018

Progress in transnational scientific and ethics review: Commentary on the proposal for a single North American review board for research on dementia
Alzheimer's & Dementia
Serge Gauthier and Julie Robillard and Johane de Champlain
DOI: 10.1016/j.jalz.2017.10.001
01/2018

Static vs interactive online resources about dementia: a comparison of readability scores
Gerontotechnology
12/2017

Communicating about the brain in the digital era
Oxford Scholarship Online
Julie M. Robillard and Emily Wight
DOI: 10.1093/oso/9780198786832.003.0028
09/2017

When Patient Engagement and Research Ethics Collide: Lessons from a Dementia Forum
Journal of Alzheimer's Disease
Julie M. Robillard and Tanya L. Feng
DOI: 10.3233/jad-161285
07/2017

A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine
npj Regenerative Medicine
Judy Illes and Douglas Sipp and Erika Kleiderman and Shelly Benjaminy and Rosario Isasi and Geoff Lomax and Zubin Master and Jennifer McCormick and Ubaka Ogbogu and Vardit Ravitsky and Julie M. Robillard and Fabio Rossi and Brenda Wilson and Amy Zarzeczny
DOI: 10.1038/s41536-017-0026-z
07/2017

Who is to blame? Medical hype in the media
Movement Disorders
Julie M. Robillard
DOI: 10.1002/mds.26998
04/2017

Intelligent and affectively aligned evaluation of online health information for older adults
Proceedings of the 31st Association for the Advancement of Artificial Intelligence (AAAI) Conference on Artificial Intelligence
02/2017

Qualitative study of affective identities in dementia patients for the design of cognitive assistive technologies
Journal of Rehabilitation and Assistive Technologies Engineering
Alexandra König and Linda E Francis and Jyoti Joshi and Julie M Robillard and Jesse Hoey
DOI: 10.1177/2055668316685038
01/2017

Co-Creating Emotionally Aligned Smart Homes Using Social Psychological Modeling
Proceedings of the 4th international Workshop on Sensor-based Activity Recognition and Interaction - iWOAR '17
Julie M. Robillard and Aaron W. Li and Shilpa Jacob and Dan Wang and Xin Zou and Jesse Hoey
DOI: 10.1145/3134230.3134242
2017

Health Advice in a Digital World: Quality and Content of Online Information about the Prevention of Alzheimer’s Disease
Journal of Alzheimer's Disease
Julie M. Robillard and Tanya L. Feng
DOI: 10.3233/jad-160650
11/2016

“A Light Switch in the #Brain”: Optogenetics on Social Media
Neuroethics
Julie M. Robillard and Cody Lo and Tanya L. Feng and Craig A. Hennessey
DOI: 10.1007/s12152-016-9276-5
08/2016

The Online Environment: A Key Variable in the Ethical Response to Complementary and Alternative Medicine for Alzheimer’s Disease
Journal of Alzheimer's Disease
Julie M. Robillard
DOI: 10.3233/jad-150641
02/2016

Manipulating Memories: The Ethics of Yesterday's Science Fiction and Today's Reality
The AMA Journal of Ethic
DOI: 10.1001/journalofethics.2016.18.12.msoc1-1612
2016

Quality and content of online information about the prevention of Alzheimer disease
Alzheimer's & Dementia
Julie M. Robillard
DOI: 10.1016/j.jalz.2015.07.151
07/2015

Scientific and ethical features of English-language online tests for Alzheimer's disease.
Alzheimer's & dementia (Amsterdam, Netherlands)
Robillard JM and Illes J and Arcand M and Beattie BL and Hayden S and Lawrence P and McGrenere J and Reiner PB and Wittenberg D and Jacova C
DOI: 10.1016/j.dadm.2015.03.004
PubMed: 27239511
07/2015

Fueling Hope: Stem Cells in Social Media
Stem Cell Reviews and Reports
Julie M. Robillard and Emanuel Cabral and Craig Hennessey and Brian K. Kwon and Judy Illes
DOI: 10.1007/s12015-015-9591-y
04/2015

Communicating in context: a priority for gene therapy researchers
Expert Opinion on Biological Therapy
Julie M Robillard
DOI: 10.1517/14712598.2015.1001735
01/2015

Prevailing Public Perceptions of the Ethics of Gene Therapy
Human Gene Therapy
Julie M. Robillard and Dylan Roskams-Edris and Boris Kuzeljevic and Judy Illes
DOI: 10.1089/hum.2014.030
08/2014

Scientific validity and ethics of freely accessible online tests for Alzheimer’s disease
Alzheimer's & Dementia
Julie Robillard and Claudia Jacova and B. Lynn Beattie and Judy Illes
DOI: 10.1016/j.jalz.2013.04.204
07/2013

Aging 2.0: Health Information about Dementia on Twitter
PLoS ONE
Julie M. Robillard and Thomas W. Johnson and Craig Hennessey and B. Lynn Beattie and Judy Illes
DOI: 10.1371/journal.pone.0069861
07/2013

Utilizing Social Media to Study Information-Seeking and Ethical Issues in Gene Therapy
Journal of Medical Internet Research
Julie M Robillard and Louise Whiteley and Thomas Wade Johnson and Jonathan Lim and Wyeth W Wasserman and Judy Illes
DOI: 10.2196/jmir.2313
03/2013

The Diction of Addiction at the Intersection of Law and Neuroscience
Addiction Neuroethics
Julie M. Robillard and Judy Illes
DOI: 10.1016/b978-0-12-385973-0.00011-9
2012

Untapped ethical resources for neurodegeneration research
BMC Medical Ethics
Julie M Robillard and Carole A Federico and Kate Tairyan and Adrian J Ivinson and Judy Illes
DOI: 10.1186/1472-6939-12-9
06/2011

Glutathione Restores the Mechanism of Synaptic Plasticity in Aged Mice to That of the Adult
PLoS ONE
Julie M. Robillard and Grant R. Gordon and Hyun B. Choi and Brian R. Christie and Brian A. MacVicar
DOI: 10.1371/journal.pone.0020676
05/2011

Lost in translation: neuroscience and the public
Nature Reviews Neuroscience
Julie M. Robillard and Judy Illes
DOI: 10.1038/nrn2773-c2
01/2011

) A link in the ink: mental illness and criminal responsibility in the media
Journal of Ethics in Mental Health
2011

Exercising Our Brains: How Physical Activity Impacts Synaptic Plasticity in the Dentate Gyrus
NeuroMolecular Medicine
Brian R. Christie and Brennan D. Eadie and Timal S. Kannangara and Julie M. Robillard and James Shin and Andrea K. Titterness
DOI: 10.1007/s12017-008-8033-2
06/2008

Hippocampal long-term depression mediates acute stress-induced spatial memory retrieval impairment
Proceedings of the National Academy of Sciences
T. P. Wong and J. G. Howland and J. M. Robillard and Y. Ge and W. Yu and A. K. Titterness and K. Brebner and L. Liu and J. Weinberg and B. R. Christie and A. G. Phillips and Y. T. Wang
DOI: 10.1073/pnas.0702308104
06/2007

Regulation of rat mesencephalic GABAergic neurones through muscarinic receptors
The Journal of Physiology
François J. Michel and Julie M. Robillard and Louis-Éric Trudeau
DOI: 10.1113/jphysiol.2003.057737
04/2004

Research
Research Group Members

Stephanie Bourne
Olivia Edwards, Research Student
Katarzyna Kabacinska, Research Staff
Gabrielle Sunderland, Research Student
Mallorie Tam, BSc Graduated