Overview

Dr. Julie Robillard is Scientist in Patient Experience at BC Children’s and Women’s Hospital and Health Centre, and Assistant Professor of Neurology at the University of British Columbia. She is also Associate Director of the National Core for Neuroethics, an interdisciplinary research group dedicated to tackling the ethical, legal, policy and social implications of advances in neuroscience. Dr. Robillard brings her multidisciplinary background in neuroscience and biomedical ethics to the study of issues the intersection of patient experience, brain health and technology. Her current work focuses on the development of tools for the evaluation of the quality, ethics and experience of health intervention and health services, with a focus on brain health technology. She is also investigating the integration of artificial intelligence in technology for older adults with dementia and their caregivers as a means to ensure adherence to ethical norms.

Publications

Progress in transnational scientific and ethics review: Commentary on the proposal for a single North American review board for research on dementia
Alzheimer's & Dementia
Serge Gauthier, Julie Robillard, Johane de Champlain
DOI: 10.1016/j.jalz.2017.10.001
01/2018

Static vs interactive online resources about dementia: a comparison of readability scores
Gerontotechnology
12/2017

Communicating about the brain in the digital era
Oxford Scholarship Online
Julie M. Robillard, Emily Wight
DOI: 10.1093/oso/9780198786832.003.0028
09/2017

When Patient Engagement and Research Ethics Collide: Lessons from a Dementia Forum
Journal of Alzheimer's Disease
Julie M. Robillard, Tanya L. Feng
DOI: 10.3233/jad-161285
07/2017

A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine
npj Regenerative Medicine
Judy Illes, Douglas Sipp, Erika Kleiderman, Shelly Benjaminy, Rosario Isasi, Geoff Lomax, Zubin Master, Jennifer McCormick, Ubaka Ogbogu, Vardit Ravitsky, Julie M. Robillard, Fabio Rossi, Brenda Wilson, Amy Zarzeczny
DOI: 10.1038/s41536-017-0026-z
07/2017

Who is to blame? Medical hype in the mediaMedical Hype in the Media
Movement Disorders
Julie M. Robillard
DOI: 10.1002/mds.26998
04/2017

Intelligent and affectively aligned evaluation of online health information for older adults
Proceedings of the 31st Association for the Advancement of Artificial Intelligence (AAAI) Conference on Artificial Intelligence
02/2017

Qualitative study of affective identities in dementia patients for the design of cognitive assistive technologies
Journal of Rehabilitation and Assistive Technologies Engineering
Alexandra König, Linda E Francis, Jyoti Joshi, Julie M Robillard, Jesse Hoey
DOI: 10.1177/2055668316685038
01/2017

Co-Creating Emotionally Aligned Smart Homes Using Social Psychological Modeling
Proceedings of the 4th international Workshop on Sensor-based Activity Recognition and Interaction - iWOAR '17
Julie M. Robillard, Aaron W. Li, Shilpa Jacob, Dan Wang, Xin Zou, Jesse Hoey
DOI: 10.1145/3134230.3134242
2017

Health Advice in a Digital World: Quality and Content of Online Information about the Prevention of Alzheimer’s Disease
Journal of Alzheimer's Disease
Julie M. Robillard, Tanya L. Feng
DOI: 10.3233/jad-160650
11/2016

“A Light Switch in the #Brain”: Optogenetics on Social Media
Neuroethics
Julie M. Robillard, Cody Lo, Tanya L. Feng, Craig A. Hennessey
DOI: 10.1007/s12152-016-9276-5
08/2016

The Online Environment: A Key Variable in the Ethical Response to Complementary and Alternative Medicine for Alzheimer’s Disease
Journal of Alzheimer's Disease
Julie M. Robillard
DOI: 10.3233/jad-150641
02/2016

Manipulating Memories: The Ethics of Yesterday's Science Fiction and Today's Reality
The AMA Journal of Ethic
DOI: 10.1001/journalofethics.2016.18.12.msoc1-1612
2016

Quality and content of online information about the prevention of Alzheimer disease
Alzheimer's & Dementia
Julie M. Robillard
DOI: 10.1016/j.jalz.2015.07.151
07/2015

Fueling Hope: Stem Cells in Social Media
Stem Cell Reviews and Reports
Julie M. Robillard, Emanuel Cabral, Craig Hennessey, Brian K. Kwon, Judy Illes
DOI: 10.1007/s12015-015-9591-y
04/2015

Communicating in context: a priority for gene therapy researchers
Expert Opinion on Biological Therapy
Julie M Robillard
DOI: 10.1517/14712598.2015.1001735
01/2015

Prevailing Public Perceptions of the Ethics of Gene Therapy
Human Gene Therapy
Julie M. Robillard, Dylan Roskams-Edris, Boris Kuzeljevic, Judy Illes
DOI: 10.1089/hum.2014.030
08/2014

Aging 2.0: Health Information about Dementia on Twitter
PLoS ONE
Julie M. Robillard, Thomas W. Johnson, Craig Hennessey, B. Lynn Beattie, Judy Illes
DOI: 10.1371/journal.pone.0069861
07/2013

Scientific validity and ethics of freely accessible online tests for Alzheimer’s disease
Alzheimer's & Dementia
Julie Robillard, Claudia Jacova, B. Lynn Beattie, Judy Illes
DOI: 10.1016/j.jalz.2013.04.204
07/2013

Utilizing Social Media to Study Information-Seeking and Ethical Issues in Gene Therapy
Journal of Medical Internet Research
Julie M Robillard, Louise Whiteley, Thomas Wade Johnson, Jonathan Lim, Wyeth W Wasserman, Judy Illes
DOI: 10.2196/jmir.2313
03/2013

The Diction of Addiction at the Intersection of Law and Neuroscience
Addiction Neuroethics
Julie M. Robillard and Judy Illes
DOI: 10.1016/b978-0-12-385973-0.00011-9
2012

Untapped ethical resources for neurodegeneration research
BMC Medical Ethics
Julie M Robillard, Carole A Federico, Kate Tairyan, Adrian J Ivinson, Judy Illes
DOI: 10.1186/1472-6939-12-9
06/2011

Glutathione Restores the Mechanism of Synaptic Plasticity in Aged Mice to That of the Adult
PLoS ONE
Julie M. Robillard, Grant R. Gordon, Hyun B. Choi, Brian R. Christie, Brian A. MacVicar
DOI: 10.1371/journal.pone.0020676
05/2011

Lost in translation: neuroscience and the public
Nature Reviews Neuroscience
Julie M. Robillard, Judy Illes
DOI: 10.1038/nrn2773-c2
01/2011

) A link in the ink: mental illness and criminal responsibility in the media
Journal of Ethics in Mental Health
2011

Exercising Our Brains: How Physical Activity Impacts Synaptic Plasticity in the Dentate Gyrus
NeuroMolecular Medicine
Brian R. Christie, Brennan D. Eadie, Timal S. Kannangara, Julie M. Robillard, James Shin, Andrea K. Titterness
DOI: 10.1007/s12017-008-8033-2
06/2008

Hippocampal long-term depression mediates acute stress-induced spatial memory retrieval impairment
Proceedings of the National Academy of Sciences
T. P. Wong, J. G. Howland, J. M. Robillard, Y. Ge, W. Yu, A. K. Titterness, K. Brebner, L. Liu, J. Weinberg, B. R. Christie, A. G. Phillips, Y. T. Wang
DOI: 10.1073/pnas.0702308104
06/2007

Regulation of rat mesencephalic GABAergic neurones through muscarinic receptorsRegulation of mesencephalic GABAergic neurones
The Journal of Physiology
François J. Michel, Julie M. Robillard, Louis-Éric Trudeau
DOI: 10.1113/jphysiol.2003.057737
04/2004

Research
Research Group Members

Stephanie Bourne
Mallorie Tam, BSc Graduated