Over the last 10 years I have developed a research interest into cystic fibrosis (CF) adolescent transition, which is the preparation of youth with CF for transfer to the adult healthcare system/adult CF clinic. I have developed a comprehensive CF transition program at BCCH whose program components have been described and presented locally, nationally and internationally. I also developed and implemented a survey to describe current CF transition practices across Canada.
I am also involved in research looking at CF health outcomes in relation to distance lived from a CF clinic; and incidence/impact on health of CF-related diabetes and CF-impaired glucose tolerance. I support CF physicians and our CF multidisciplinary team in ongoing clinical research, and our team works closely with the adult CF clinic at St. Paul's on several joint projects.
Evaluation of a CF "readiness to graduate" (to adult healthcare) questionnaire: This is a retrospective analysis of a quality improvement project to improve health care in CF youth.
Evaluation of a transitional pathway in CF care: This is a retrospective analysis of a quality improvement project to improve health care in CF youth. (Principal Investigator)
Incidence and Impact on Health of CF-related Diabetes and CF-impaired glucose tolerance in B.C. (Principal investigator, self-funded)