Who we are
Researchers at BC Children's Hospital Research Institute are working with industry partners from Careteam, Secure Key, IDENTOS and Smile CDR to conduct the BC Children's Type 1 Diabetes (T1D) TrustSphere Pilot, including the development of the BC Children's Hospital Care Hub app and assessment of the ability of the Care Hub app to provide the benefits of data-driven, digital healthcare, in the hopes that it will empower patients to improve how they manage their health, wellness and care journey.
TrustSphere Project Leads
![Shazhan Amed](/sites/default/files/styles/square/public/group-trustsphere/shazhan-amed.png?h=fb19437d&itok=uP5KDTEd)
Shazhan Amed, MSc, MD
Project Lead
Clinical Professor & Head, Division of Endocrinology, Department of Pediatrics, UBC; Founder & Lead, Live 5-2-1-0, BC Children's Hospital
![Wyeth Wasserman](/sites/default/files/styles/square/public/group-trustsphere/w-wasserman-approved-for-use-in-programs-etc-march-2015.jpg?h=fe36c9fa&itok=Jh3gNaQu)
Wyeth Wasserman, PhD
Project Co-lead
Professor, Department of Medical Genetics, UBC; Vice-President Research, BC Children's Hospital; Associate Dean (Research), BC Children's Hospital Research Institute, Faculty of Medicine, UBC; Senior Scientist, Centre for Molecular Medicine and Therapeutics
TrustSphere Research Working Group Members
![](/sites/default/files/styles/square/public/group-trustsphere/fatema-abdulhussein_0.jpg?h=5d423af6&itok=jT31Itxq)
Fatema Abdulhussein, MD, FAAP, FRCPC
Clinical Instructor, Staff Pediatric Endocrinologist, BC Children’s Hospital
![Elizabeth Borycki](/sites/default/files/styles/square/public/group-trustsphere/elizabeth-borycki-headshot.jpg?h=faf09c7e&itok=h_U2Xqs3)
Elizabeth Borycki, RN, HBScN, MN, PhD
Professor, School of Health Information Science & Director, Global Laboratory for Digital Health Innovation, University of Victoria
MSFHR Health Professional Investigator; Co-lead, NSERC Visual and Automated Disease Analytics (VADA); Vice and Founding Chair, WG Health Informatics for Patient Safety (IMIA)
![Matthias Görges](/sites/default/files/styles/square/public/group-trustsphere/matthias-gorges.jpg?h=e763552f&itok=2miSrHN1)
Matthias Görges, MSc, PhD
Co-Lead, Clinical & Community Data, Analytics & Informatics, Evidence to Innovation, BC Children's Hospital
Assistant Professor, Department of Anesthesiology, Pharmacology & Therapeutics, Faculty of Medicine, University of British Columbia
![L Kit Johnson](/sites/default/files/styles/square/public/group-trustsphere/l-kit-johnson.png?h=73913767&itok=yibI9AIG)
L Kit Johnson, BSc, MBA
Provincial Director, Clinical Service Innovation and Quality, Child Health BC
![Andre Kushniruk](/sites/default/files/styles/square/public/group-trustsphere/andre-kushniruk-headshot.jpg?h=932714f7&itok=PduC0EfA)
Andre Kushniruk, BSc, BA, MSc, PhD
Director and Professor, School of Health Information Science, University of Victoria
![Holly Longstaff](/sites/default/files/styles/square/public/group-trustsphere/holly-longstaff.png?h=f24317e1&itok=urvLWcUZ)
Holly Longstaff, PhD
Director, Privacy and Access, PHSA Research and New Initiatives, PHSA
![Elodie Portales-Casamar](/sites/default/files/styles/square/public/group-trustsphere/elodie-portales-casamar.png?h=691484d7&itok=SsWrnlqP)
Elodie Portales-Casamar, PhD
Director, Research Informatics, BC Children's Hospital Research Institute
Clinical Assistant Professor, Division of Allergy & Immunology, Department of Pediatrics, UBC
![Tibor van Rooij](/sites/default/files/styles/square/public/group-trustsphere/tibor-van-rooij-2.png?h=fe1eb449&itok=Q8-ydI0z)
Tibor van Rooij, PhD
Lead, Digital Health Research initiative, BC Children's Hospital Research Institute
Adjunct Professor, Department of Computer Science, UBC
![Bruce Verchere](/sites/default/files/styles/square/public/group-trustsphere/bruce-verchere.png?h=589c1128&itok=0vxc12dQ)
Bruce Verchere, PhD
Professor, Departments of Surgery and Pathology & Laboratory Medicine, UBC; Irving K Barber Chair in Diabetes Research; Director, Centre for Molecular Medicine and Therapeutics
![Alice Virani](/sites/default/files/styles/square/public/group-trustsphere/alice-virani-headshot.jpg?h=e660511f&itok=5INiDrd3)
Alice Virani, PhD
Director, Ethics Service, Provincial Health Services Authority (PHSA); Clinical Assistant Professor, Department of Medical Genetics, UBC
TrustSphere Postdoctoral Fellows
![Anila Virani](/sites/default/files/styles/square/public/group-trustsphere/anila-virani-headshot.jpg?itok=NrsFQ-ZB)
Anila Virani, PhD
Postdoctoral Fellow – UI/UX
![Yoelit Lipinsky](/sites/default/files/styles/square/public/group-trustsphere/yoelit-lipinsky.png?h=742f73cf&itok=QpK5mfzs)
Yoelit Lipinsky, PhD
Postdoctoral Fellow – Ethics
![J. Quetzalcóatl Toledo-Marín](/sites/default/files/styles/square/public/group-trustsphere/j.-quetzalcoatl-toledo-marin.png?h=1919edb6&itok=a8hHvKbU)
J. Quetzalcóatl Toledo-Marín, BSc, MSc, PhD
Postdoctoral Fellow – Data Sharing
![Taqdir Ali](/sites/default/files/styles/square/public/group-trustsphere/taqdir-ali-2.png?itok=la7acwro)
Taqdir Ali, PhD
Postdoctoral Fellow – Data Architecture
TrustSphere Project Staff
TrustSphere Project Staff
![Susan Pinkney](/sites/default/files/styles/square/public/group-trustsphere/susan-pinkney.jpg?h=957e6236&itok=WIfrXqmQ)
Susan Pinkney, MA
Senior Clinical Research Coordinator
![Bonnie Barrett](/sites/default/files/styles/square/public/group-trustsphere/bonnieb-2.jpg?h=413b7f00&itok=HHDBPNl_)
Bonnie Barrett
Project Manager