2024

  1. Blanche E, Wainstein T, Dey A; GenCOUNSEL Study, Elliott AM. (2024). Genetic counselors' research dissemination practices and attitudes. Journal of Genetic Counseling. 33(2):413-424. [link]
  2. Wainstein T, Yeung D, Jennings L; GenCOUNSEL Study, Elliott AM. (2024). Adolescents' implicit and explicit attitudes toward their peers with genetic conditions. Journal of Adolescence. [link]
  3. Birch P, Beauchesne R, Bansback N, Boelman C, Connolly M, Demos M, Friedman JM, Race S, Stockler S, GenCOUNSEL Study, Elliott AM, Adam S. (2024). Where there is no genetic counsellor: An online decision-aid supports patients’ diagnostic genomic testing choices. Genetics in Medicine. [link]
  4. Rojas SK, Adam S; GenCOUNSEL Study, Elliott AM, Zawati MH. Genetic counselors outside of the genetics clinic: Roles, practices, and ethico-legal implications in light of lagging legal recognition across Canada. Journal of Genetic Counseling. [link]

2023

  1. Heaton, J., Wainstein, T.; CAUSES Study; GenCOUNSEL Study, Elliott, A. M., & Austin, J. (2023). The experiences of adolescent siblings of children with rare genetic conditions: “It's made me who I am”. Journal of Genetic Counseling, 32, 224– 234. [link]

  2. Beauchesne R, Birch P, Elliott AM. Genetic counselling resources in non-English languages: A scoping review. PEC Innovation. [link]

  3. Grant, P, Cook, CB, Langlois, S, et al. Evaluation of out-of-pocket pay genetic testing in a publicly funded healthcare system. Clinical Genetics. 2023; 103( 4): 424- 433. [link]

  4. Beauchesne R, Birch P, GenCOUNSEL Study, Elliott AM. (2023). Genetic Counselling Resource in non-English Languages: A scoping review. PEC Innovation. [link]

  5. Rodriguez Llorian E, Kopac N, Waliji LA, Borle K, Dragojlovic N, Elliott AM, Lynd L. (2023). A Rapid Review on the Value of Biobanks Containing Genetic Information. Value Health. [link]

  6. Dragojlovic N, Borle K, Kopac N, Nisselle A, Nuk J, Jevon M, Friedman JM, GenCOUNSEL Study, Elliott AM, Lynd LD. (2023). Workforce implications of increased referrals to hereditary cancer services in Canada: a scenario-based analysis. Current Oncology. [link]

  7. Kim S, Pistawka C, Langlois S, Osiovich H, Virani A, Kitchin V, GenCOUNSEL Study, Elliott AM. (2023). Genetic counselling considerations with genetic/genomic testing in Neonatal and Pediatric Intensive Care Units: A scoping review. Clinical Genetics.105(1), 13–33. [link]

2022

  1. Borle K, Kopac N, Dragojlovic N, Rodriguez Llorian E, Friedman JM, Elliott AM, & Lynd LD. (2022). Where is genetic medicine headed? Exploring the perspectives of Canadian genetic professionals on future trends using the Delphi method. European Journal of Human Genetics. [link]
  2. Wainstein T, Marshall SK, Ross CJD, Virani A, GenCOUNSEL Study, Austin JC, Elliott AM. (2022). Experiences With Genetic Counseling, Testing, and Diagnosis Among Adolescents With a Genetic Condition: A Scoping Review. JAMA Pediatrics. [link] 
  3. Handra J, Guimond C, Jordan I, Lenahan B, Ohs K, Beauchesne R, Adam S, Friedman JM, Birch P. (2022). A personalized genomic results e-booklet, co-designed and pilot-tested by families.  Patient Education and Counselling – Innovation. [link] 
  4. Cheung F, Birch P, Friedman JM, CAUSES Study, GenCOUNSEL Study, Elliott AM,  Adam S. The long-term impact of receiving incidental findings on parents undergoing genome-wide sequencing. (2022). Journal of Genetic Counseling. [link]
  5. Slomp C, Morris E, GenCOUNSEL Study, Price M, Elliott AM, Austin J. The stepwise process of integrating a genetic counsellor into primary care. (2022) European Journal of Human Genetics. [link]

2021

  1. Enns EA, Wainstein T, Dragojlovic N, Kopac N, GenCOUNSEL Study, Lynd LD, Elliott AM. (2021). Far and Wide: Exploring provider utilization of remote service provision for genome-wide sequencing in Canada. Molecular Genetics and Genomic Medicine. [link]
  2. Borle K, Dey A, Carrion P, Slomp C, GenCOUNSEL Study, Austin J, Elliott AM. (2021). COVID-19 and Genetic Counselling Research: A Lesson in Resiliency. Journal of Genetic Counseling. [link]
  3. Speaking the same language: why linguistic equity is key to making genomic medicine accessible. Rhea Beauchesne, GenCOUNSEL Project. (2021). Rare Revolution Magazine. [link]
  4. Lambert DM, Patrinos D, Knoppers BM, Zawati MH. (2021). Genetic counselors and legal recognition: A made-for-Canada approach. Journal of Genetic Counseling. [link]
  5. Liang N, Adam S, Elliott AM, Siemens A, du Souich C, CAUSES Study, GenCOUNSEL Study, Friedman JM, Birch P. (2021). Beyond the Diagnostic Odyssey: After Genomic Results: Parents’ Long-Term Views. Journal of Genetic Counseling. [link]
  6. Grant P, Langlois S, Lynd L, GenCOUNSEL Study, Austin J, Elliott AM. (2021). Out-of-pocket pay in clinical genetic testing: a scoping review. Clinical Genetics. [link]
  7. Dragojlovic N, Kopac N, Borle K, Tandun R, Salmasi S, Ellis U, Birch P, Adam S, Friedman J, GenCOUNSEL Study, Elliott AM, Lynd LD. (2021). Utilization of clinical genetics services in high-income countries: A scoping review. Health Policy. [link]

2020

  1. Dragojlovic N, Borle K, Kopac N, Ellis U, Birch P, Adam S, Friedman JM, Nisselle A, GenCOUNSEL Study, Elliott AM, Lynd LD. (2020). The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review. Genetics in Medicine. [link]
  2. Patrinos D, Caron R, Knoppers BM, GenCOUNSEL Study, Zawati MH, “Genetic Counsellors, Legal Recognition and the Road Less Travelled.” (2020) McGill Journal of Law and Health. [link]
  3. Aldridge CE, Osiovich H, Siden H, RAPIDOMICS Study, GenCOUNSEL Study,  Elliott AM. Rapid genome‐wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences. (2020). Journal of Genetic Counseling. [link]
  4. Cook C, Dragojlovic N, Siemens A, Adam S, du Souich C, van Karnebeek C, Lehman A, Nelson TN, Friedman JM, Lynd LD, Elliott AM, Integration of genetic counsellors in genomic testing triage: Outcomes of a Genomic Consultation Service in British Columbia, Canada. (2020). European Journal of Medical Genetics. [link]