• The Silent Genomes Project:  The pursuit of equity in genomics healthcare for Indigenous Peoples in Canada.  Presented by Silent Genomes Project team members Brittany Morgan (Community Engagement Coordinator) and Sarah McIntosh (Genetic Counsellor) for the Canadian Association of Genetic Counsellors ‘Current Issues’ Webinar Series, September 9, 2021.

 *Trigger warning: This webinar includes a discussion of anti-Indigenous racism within the healthcare system and the harmful history of research done on Indigenous Peoples, which may be triggering for some.

 

• The Code of Life, a Genome BC podcast. EPISODE 012 | April 25, 2021, Bridging the Genomic Divide

 

The University of British Columbia, UBC Learning Circle

• September 29th, 2020 – Silent Genomes Project: Getting Involved in BC

• May 2nd, 2019 – The Silent Genomes Project: First Nations Perspectives on Precision Diagnosis of Rare Diseases in British Columbia

 

TELUS Storyhive video

• Voicing the Silent Genome

• Mshkikiininiikwe: Building the Northern Biobank

 

• Ethical Frameworks for Research Collaboration with Indigenous Communities. ELSI Virtual Forum, Columbia University Department of Medical Humanities and Ethics, June 15-16, 2020, #ELSIvirtual

 

• Lifting of the Makutu

 

 

 

 

 

Web Resources

• Genomics Aotearoa

 

• Collaborative Research Center for American Indian Health (CRCAIH)

 

• Māori Ethical Frameworks 

 

• Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS)

 

• Urban Indian Health Institute (UIHI)