Silent Genomes Project Team and Partners
Silent Genomes Project team and our partners at the Gathering Ceremony, July 2018

Activity 1
First Nations, Inuit and Métis Engagment, Governance and Capacity Building

Dr. Nadine CaronNadine R. Caron 
MD, MPH, FRCSC Associate Professor, UBC Northern Medical Program Co-Director, UBC Centre for Excellence in Indigenous Health

Co-Project Leader and Team Lead Activity 1

Nadine Caron currently resides in Prince George, BC where she provides surgical oncology care for those that call rural and remote Canada home. Nadine is also an associate professor in the UBC Faculty of Medicine’s Department of Surgery where she teaches in the Northern Medical Program. During her surgical residency, Nadine completed a Master’s in Public Health from Harvard University and was awarded UBC’s Top Student Award. Nadine is also appointed as an Associate Faculty member of the Bloomberg School of Public Health, Johns Hopkins University where she teaches for the Center for American Indian Health. Nadine is Anishnawbe from Sagamok First Nation. Her work involves a variety of audiences and knowledge users including governments, provincial health authorities, national medical organizations, health research funding bodies, and several universities to achieve identified and overlapping objectives. In 2014, she was appointed Co-Director of the UBC Centre for Excellence in Indigenous Health located at UBC’s School of Population and Public Health.
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Irina ManokhinaIrina Manokhina
MD, PhD

Scientific Project Manager

Irina Manokhina is an MD and PhD scientist with 15 years of experience in clinical and molecular genetics. She has been involved in the development of diagnostic tools for inherited conditions for the entirety of her career. Her PhD research was focused on Cancer Genetics, and was followed by six wonderful years as a postdoctoral fellow at the University of British Columbia at the BC Children’s Hospital Research Institute (BCCHR). She has been the recipient of many research awards including the Presidential Scholarship (Russia), Mining for Miracles Postdoctoral Fellowship (BCCHR), and Clinical and Translational Seed Grant (BCCHR). Her current role is working as the Scientific Project Manager on the Silent Genomes project. Her primary areas of teaching are foundations of medical practice, introduction to biomedical research, laboratory diagnostics, and bioethics. She enjoys drawing, travelling, and winter sports.

Nanibaa’ GarrisonNanibaa’ Garrison
Assistant Professor, Dept. of Pediatrics, Div. of Bioethics, University of Washington, School of Medicine; Seattle, Children’s Research Institute 

Co-Investigator

Dr. Garrison is Assistant Professor in the Treuman Katz Center for Pediatric Bioethics at Seattle Children’s Research Institute and Department of Pediatrics at the University of Washington.  She is also faculty for the Summer internship for INdigenous peoples in Genomics (SING) Workshop, a competitive yearly one-week workshop covering the uses, misuses, and limitations of genomics as a tool for indigenous peoples' communities.  Dr. Garrison's research interests include ethical issues in genetics research such as informed consent, issues with privacy and confidentiality, and special issues for diverse groups with a concentration on Native American communities.
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Leah BallantyneLeah Ballantyne
BA, LLM

Policy & Governance Project Manager

Leah Ballantyne, LLM has over 15 years experience in policy and governance with First Nations communities.  She has worked with grassroots communities, as well as with national organizations including the Chiefs of Ontario and Assembly of First Nations.  She also brings international advocacy experience to the Silent Genomes team, having worked with the Citizen’s Constitutional Forum, CCF Steering Committee, and the United Nations NGO Coalition on Human Rights in Suva, Fiji.  Leah earned her Masters of Law Degree with a specialization in International and Comparative laws from the University of Hawaii, where she was also the 2016-2017 recipient of the Boaz Fellowship.  Leah is a Treaty Six band member of the Mathias Colomb Cree Nation in Pukatawagan, Manitoba, and is proud to be part of the Silent Genomes team as the Policy & Governance Project Manager.

Sarah McIntoshSarah McIntosh
MSc, CCGC

Genetic Counsellor and Research Coordinator, Activities 1 and 2

Sarah completed her MSc in Genetic Counselling at the University of British Columbia in 2000. She began her career working in hospital-based genetics clinics in New Zealand, Vancouver and Victoria. Over the years, she felt a draw to community-based research, and joined the Community Genetics Research Program in 2006. She provides participant-centred genetic counselling, knowledge translation, and research coordination for multiple research projects, including "Primary Biliary Cirrhosis in the First Nations People of BC", "The Impact of Long QT Syndrome on First Nations people of Northern British Columbia ", the Northern BC First Nations cohort of the “Canadian Alliance Study for Healthy Hearts and Minds”, and "Silent Genomes". Growing up in the small coastal community of Ucluelet on Vancouver Island fostered Sarah’s interest in rural and Indigenous health.  She is enthusiastic about bringing her skills and experience to “Silent Genomes” – a project which combines her interests in genetics and Indigenous health, with her commitment to justice and Truth and Reconciliation.

Brittany MorganBrittany Morgan
BSc

Community Engagement Coordinator

Brittany Morgan completed her BSc in Microbiology at the University of Victoria in 2015 and is currently completing her Masters in Public Health at UVIC with an Indigenous Peoples’ Health focus area. Her previous volunteer and work experience were centered within Indigenous run organizations and non-profits. She has joined the Community Genetic Research Program as one of the Community Engagement Coordinators for the "Silent Genomes" Project. Brittany is Nuu-chah-nulth and Secwepemc, but grew up near her traditional territory on the West Coast of Vancouver Island. Her research interests include Indigenous Peoples’ health and governance, community-based approaches, social determinants of health, and health equity. 

Laurie Kariiosta Montour
BSc, BA

Community Engagement Coordinator

I am an Indigenous biologist working for indigenous communities. My work has to be pragmatic; it has to withstand tough questions about the purpose of research, its benefits and costs.  It has to take into account community life and cultural practices, family relations and politics. I was born and raised in the Mohawk Territory of Kahnawake. Any time I enter a Native community, in some way, it’s like coming home again. I enter humbly, with wonder at how each place has created its own sense of community, and amazed at the resilience and strength it takes to heal and move forward. The Silent Genomes Project is truly looking seven generations ahead to protect our unborn, while building tools and human capacity to take care of the gift transferred to us by our ancestors.  The challenge is to stay grounded, and to make sure this project is done properly so at the end of the day, our people have equitable access to the best health care.

Laura ArbourLaura Arbour
MD, MSc, MSc, FRCPC, FCCMG Professor, Medical Genetics, University of British Columbia; Affiliate Professor, Division of Medical Sciences, University of Victoria

Project Leader

Dr. Laura Arbour is a Professor in the Department of Medical Genetics situated at the UBC Island Medical Program, and an Affiliate Professor in the Division of Biomedical Sciences at the University of Victoria. Her clinical practice and research focuses on northern and Indigenous health issues as they pertain to genetics. Trained as both pediatrician and clinical geneticist (McGill University), her research integrates maternal-child health issues and the study of rare genetic conditions in Indigenous persons, families and communities. She leads the Community Genetics Research Program situated at the University of Victoria, and works with First Nations and Inuit partners on several projects. 
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Tofino, BC