Silent Genomes Project
Reducing health-care disparities and improving diagnostic success
for Indigenous children with genetic disease
Silent Genomes Project Home
Our Team
Silent Genomes Project Activity 1 Team
First Nations, Inuit and Métis engagement, governance and capacity building.
Silent Genomes Project Activity 2 Team
Precision diagnosis for Indigenous families with genetic conditions.
Silent Genomes Project Activity 4 Team
Economics of genomic Diagnosis in Indigenous Populations.
International Indigenous Genomics Advisory Committee
The International Indigenous Genomics Advisory Committee (IIGAC), is a panel of international Indigenous experts including Indigenous scholars from Canada, the United States, Hawaii, Australia, and New Zealand (Aotearoa). The IIGAC is providing the Silent Genomes research team with external guidance, insight and advice on the projects’ strategic goals and deliverables, as well as providing insight into International best practices.
Silent Genomes Indigenous Rare Disease Diagnosis Steering Committee
Established to provide cultural oversight & strategic advice in support of the collaborative creation, implementation, and utilization of the IBVL including respectful, culturally safe policies regarding access to data for clinical diagnoses [and related research].
Document: S-GIRDD Steering Commitee Terms of Reference
Be FAIR and CARE
Be FAIR and CARE: Operationalizing responsible Indigenous data sharing to benefit patients with rare diseases
Meetig agenda
Donate to Research
We believe there’s nothing we can’t do with your support. It can take years to turn scientific breakthrough into new interventions and treatments. Funding helps speed the pace of change. When given the resources, we can bring transformative therapies – and hope – out of the laboratory and into the clinic to save and improve children’s lives.