Predictors and Patient Experiences that Enable Access to Care of Post-Traumatic Stress in Pediatric Solid Organ Transplant Recipients

Project Summary

Despite restoration of organ function by transplantation, many children go on to develop PTS symptoms. Using a mixed-methods design, part 1 retrospectively identified clinical factors to develop a predictive model of PTS risk. Part 2 involves semi-structured interviews with families who report PTS symptoms to provide patient-centred perspectives regarding their transplant care. Common patient experience themes that impede or facilitate awareness of PTS, access to resources, and readiness to engage with mental health services will be explored. Coupling a risk factor analysis with qualitative interviewing will provide a richer understanding of the complexity of factors that impact families during their transplant care.

This study was conducted by Dr. Tom Blydt-Hansen's research team at BC Children's Hospital Research Institute. The study provides a better understanding of the determinants of post-traumatic stress (PTS) symptoms in pediatric solid organ transplant (SOT) recipients using semi-structured

This study is funded by Canadian Donation and Transplantation Research Program (CDTRP; formerly CNTRP).

Project Status

Status: Active, data collection ongoing
Study End Date: December 31, 2023

Study Enrollment Status: Active

Project Team

Principal Investigator

Tom Blydt-Hansen

Dr. Julie Robillard
Julia Wu 
Tatsuma Hind 
Katherine Broad
Dr. Kathryn Armstrong
Dr. Richard Schreiber 

Research Team Members

Monica Ho - Research Coordinator
Linda Li - Research Assistant
Mallorie Tam - Research Assistant
Candice Wiedman - Research Coordinator

Enrollment Eligibility Criteria
  1. Children aged 12 or older at the time of study enrolment; OR
  2. parent of qualifying child with a transplant (<19 at transplant AND at least one CTSQ reported)
  3. Child was aged <19 years old at the time of transplant
  4. Previously consented to participate in HOPESOT
  5. Child has at least one valid CTSQ report with a score of 3-10 (top quartile)
  6. Fluent in English